#genetska bolest

03 April 2024, Saxony, Zwickau: K?the, who suffers from the very rare butterfly disease, undergoes daily, two-hour dressing changes. The four-year-old suffers from incurable epidermolysis bullosa (EB) - a genetic defect causes the cohesion of the skin layers to be weakened. The result: even the smallest injuries, friction or pressure lead to blisters and open wounds. A new treatment method from the USA offers hope. A gel is used to supply the skin with new collagen7A1 genes. The sticking point: the price of around 800,000 US dollars (around 737,000 euros) for a six-month treatment. Photo: Jan Woitas/dpa Photo: Jan Woitas/DPA

PREKRETNICA U LIJEČENJU TEŠKE BOLESTI

“Djecu leptire” genska terapija liječi kroz kožu